IDEA4RC

The main objective of this project is to establish a Data Space for rare cancers (RC) that will make possible the re-use of existing multisource health data (cancer registry data, national registries, data from biobanks etc.) across European healthcare systems leveraging emerging interoperability technologies and AI approaches. The realized “Rare Cancer Data Ecosystem” is expected to improve the quality and the organization of RC patients care, and to increase knowledge on rare cancers advancing health research, so that all patients have equal access to high quality specialist care. The project approach will be experienced in the framework of the European reference network for rare adult solid cancers (EURACAN).

Consortium

FONDAZIONE IRCCS ISTITUTO NAZIONALE DEI TUMOR, IT
UNIVERSIDAD DE LA IGLESIA DE DEUSTO ENTIDAD RELIGIOSA, ES
MULTIMED ENGINEERS SRL, IT
UNIVERSIDAD POLITECNICA DE MADRID, ES
HL7 INTERNATIONAL FONDATION, BE
EUROPEAN CENTRE FOR CERTIFICATION AND PRIVACY, LU
ENGINEERING – INGEGNERIA INFORMATICA SPA, IT
ETHNIKO KENTRO EREVNAS KAI TECHNOLOGIKIS ANAPTYXIS, GR
UNIVERSITEIT UTRECHT, NL
DIGITAL INSTITUTE FOR CANCER OUTCOMES RESEARCH, BE
FONDAZIONE BRUNO KESSLER, IT
STICHTING INTEGRAAL KANKERCENTRUM NEDERLAND, NL
CENTRE DE LUTTE CONTRE LE CANCER LEON BERARD, FR
ASSISTANCE PUBLIQUE HOPITAUX DE PARIS, FR
INSTITUTO INVESTIGACION SANITARIA FUNDACION JIMENEZ DIAZ, ES
VÄSTRA GÖTALANDSREGIONEN, SE
Narodowy Instytut Onkologii im. Marii Sklodowskiej-Curie – Panstwowy Instytut Badawczy, PL
FAKULTNI NEMOCNICE V MOTOLE, CZ
OSLO UNIVERSITETSSYKEHUS HF, NO
MASARYKUV ONKOLOGICKY USTAV, CZ
CLININOTE SPOLKA Z OGRANICZONA ODPOWIEDZIALNOSCIA, PL
FUNDACION PROFESOR NOVOA SANTOS, ES
NEDERLANDSE ORGANISATIE VOOR TOEGEPAST NATUURWETENSCHAPPELIJK ONDERZOEK TNO, NL
INFERENZE SOC. COOP, IT
UNIVERSITAETSKLINIKUM ESSEN, DE